RT @TomKindlon: This open-access 2017 paper “PACE Investigators’ response is misleading regarding patient survey results” https://t.co/5Kjy…
RT @Dan_Wyke: "A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to wor…
RT @Dan_Wyke: "A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to wor…
RT @Dan_Wyke: "A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to wor…
RT @Dan_Wyke: "A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to wor…
RT @Dan_Wyke: "A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to wor…
RT @Dan_Wyke: "A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to wor…
RT @TomKindlon: This open-access 2017 paper “PACE Investigators’ response is misleading regarding patient survey results” https://t.co/5Kjy…
@Huxberry1 Ask for the published evidence then show them the following: https://t.co/GHwR5IoDUy
RT @TomKindlon: This open-access 2017 paper “PACE Investigators’ response is misleading regarding patient survey results” https://t.co/5Kjy…
😡😡Indignante! Sed claros! No os importan los enfermos. 💰💰💰Día 33😡😡@NICEComms Vergonzoso lo que estáis haciendo con los pacientes de #EncefalomielitisMialgica #EMSFC Es Corrupción. Sois cómplices del maltrato y abandono a los enfermos #PublishThatGuideline
PACE investigators’ response is misleading regarding patient survey results #MECFS #PACEtrial https://t.co/zTiqer5TFC
RT @TomKindlon: This open-access 2017 paper “PACE Investigators’ response is misleading regarding patient survey results” https://t.co/5Kjy…
RT @TomKindlon: This open-access 2017 paper “PACE Investigators’ response is misleading regarding patient survey results” https://t.co/5Kjy…
This open-access 2017 paper “PACE Investigators’ response is misleading regarding patient survey results” https://t.co/5KjynND2US contains data & well-argued arguments that are likely useful to know with upcoming NICE roundtable (& likely spin from
RT @Th3birdman333: @profmsharpe Incorrect. Give these a read: https://t.co/5gnUtug31s https://t.co/Ll2QR9ENyT https://t.co/J9awRVDmjs…
RT @Th3birdman333: @profmsharpe Incorrect. Give these a read: https://t.co/5gnUtug31s https://t.co/Ll2QR9ENyT https://t.co/J9awRVDmjs…
@profmsharpe Incorrect. Give these a read: https://t.co/5gnUtug31s https://t.co/Ll2QR9ENyT https://t.co/J9awRVDmjs https://t.co/JJ14p3DUjR https://t.co/c7xXmq1b9x
RT @TomKindlon: @MECFSNews Yes, I refer to some data on that in the paper. As I recall, a good discussion of that is in https://t.co/5KjynN…
@MECFSNews Yes, I refer to some data on that in the paper. As I recall, a good discussion of that is in https://t.co/5KjynND2US
RT @MECFSNews: Source https://t.co/qv6PaMG8aG
RT @MECFSNews: Source https://t.co/qv6PaMG8aG
RT @MECFSNews: Source https://t.co/qv6PaMG8aG
Source https://t.co/qv6PaMG8aG
@sfmnemonic @ollie72 @brentmerritt @profmsharpe 1/2 We have been branded as unreliable witnesses to our own idisease experience. For over 20 years patient surveys show that the majority have no or adverse effects (GET+CBT). "When patients say ‘This is har
Your reminder that most #pwME don’t experience exercise, CBT, or GET as helpful and professionally-directed courses have worse, not better, outcomes than self-management, regardless of what #CDC or #PACETrial PIs may say. #MEcfs #PatientExperience https:/
RT @stopGETteam: @MEActNetUK @MrTopple @actionforme This is the patient response to those studies. Why would further activity management st…
#pacetrialdebate See HealthWatch reports aswell . Trafford data on whole U.K ! Over 500 surveyed GET made worse CBT no difference + Pacing Best [pacing does not included planned increases in activity #MEinterventions ] @CMonaghanSNP #stopGET #pacetr
RT @stopGETteam: @MEActNetUK @MrTopple @actionforme This is the patient response to those studies. Why would further activity management st…
@MEActNetUK @MrTopple @actionforme This is the patient response to those studies. Why would further activity management studies carry on with anything other than Pacing? (BTW They don’t they fund further CBT and GET studies 🤦🏻♀️😡) This isn’t doing anythin
@amandajane_590 @chronicinclude @Row_RowYourBoat @laurawizadora What do you mean? This article is open access and where that graph is from https://t.co/oR9lYBhxls
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
RT @JaneCColby: Goodness. "I'm really shocked and surprised by this." Said no ME expert ever. #PACEGATE https://t.co/kSJZeSt33d
RT @JaneCColby: Goodness. "I'm really shocked and surprised by this." Said no ME expert ever. #PACEGATE https://t.co/kSJZeSt33d
Goodness. "I'm really shocked and surprised by this." Said no ME expert ever. #PACEGATE https://t.co/kSJZeSt33d
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
Patient experience of chronic fatigue syndrome / ME treatments. Pacing is the most helpful. https://t.co/WgORFOpouE https://t.co/WhCAYpT8fx
RT @ciarakirke: Lots re chronic fatigue syndrome / ME treatment in J Health Psychology https://t.co/hyU7rRAaii. Key point avoid graded exer…
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
Lots re chronic fatigue syndrome / ME treatment in J Health Psychology https://t.co/hyU7rRAaii. Key point avoid graded exercise therapy https://t.co/rWs5PVSMi3
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
RT @newhealthpsych: PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwP…
PACE investigators’ response is misleading regarding patient survey results - Karen D Kirke, 2017 https://t.co/w1K0LJwPXX
RT @ciarakirke: If you're wondering what treatment to recommend for ME/CFS, patient opinion resoundingly warns against Graded Exercise Ther…
RT @ciarakirke: If you're wondering what treatment to recommend for ME/CFS, patient opinion resoundingly warns against Graded Exercise Ther…
RT @ciarakirke: If you're wondering what treatment to recommend for ME/CFS, patient opinion resoundingly warns against Graded Exercise Ther…
RT @ciarakirke: Primum non nocere. It is important to understand patient reported outcome measures in this difficult disease #MECFS https:/…
RT @exceedhergrasp1: "GET ranked 2nd most harmful of 20, 1st of 25 & 1st of 15 [in 3 patient surveys]." #stopGET #MillionsMissing https://t…
RT @stopGETteam: Do patient surveys support the PACE authors' view of graded exercise therapy? The answer is a RESOUNDING NO https://t.co/j…
RT @Invisible_ME_FR: I managed 5 #GET sessions that doc insisted I do as they were "the ONLY way to recover from #ME" before stopping as th…
RT @ciarakirke: If you're wondering what treatment to recommend for ME/CFS, patient opinion resoundingly warns against Graded Exercise Ther…
RT @ciarakirke: Primum non nocere. It is important to understand patient reported outcome measures in this difficult disease #MECFS https:/…
RT @IrishMECFSAssoc: The author is one of our members. #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #GradedExercise #CBT #pacing #CFS…
RT @TomKindlon: From: PACE investigators’ response is misleading regarding patient survey results https://t.co/MY5QEouKxE … #GET #myalgic…
RT @TapanuiFlu: .@NICEcomms, wud a drug treatment that made 49% of patients WORSE ever be approved? No? Please change #MEcfs guidelines! #N…
.@NICEcomms, wud a drug treatment that made 49% of patients WORSE ever be approved? No? Please change #MEcfs guidelines! #NICEisnotnicetoME https://t.co/lQ9NSTmzkS
RT @ciarakirke: Primum non nocere. It is important to understand patient reported outcome measures in this difficult disease #MECFS https:/…
RT @TomKindlon: From: PACE investigators’ response is misleading regarding patient survey results https://t.co/MY5QEouKxE #GET #CBT #paci…
RT @TomKindlon: From: PACE investigators’ response is misleading regarding patient survey results https://t.co/MY5QEouKxE #GET #CBT #paci…
RT @ciarakirke: Primum non nocere. It is important to understand patient reported outcome measures in this difficult disease #MECFS https:/…
RT @ciarakirke: Primum non nocere. It is important to understand patient reported outcome measures in this difficult disease #MECFS https:/…
RT @ciarakirke: If you're wondering what treatment to recommend for ME/CFS, patient opinion resoundingly warns against Graded Exercise Ther…
RT @TomKindlon: From: PACE investigators’ response is misleading regarding patient survey results https://t.co/MY5QEouKxE … … #CBT #myalg…