| Title |
PACE investigators’ response is misleading regarding patient survey results
|
|---|---|
| Published in |
Journal of Health Psychology, May 2017
|
| DOI | 10.1177/1359105317703787 |
| Pubmed ID | |
| Authors |
Karen D Kirke |
| Abstract |
The PACE investigators' citation of a patient survey might mislead readers into thinking that the experience of people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) supports PACE findings. In fact, patient survey evidence directly contradicts the results of the PACE trial. A review of survey data published between 2001 and 2015 reveals that for most patients, graded exercise therapy leads to worsening of symptoms, cognitive behavioural therapy leads to no change in symptoms, and pacing leads to improvement. The experience of people with ME/CFS as reflected in surveys is a rich source of information, made more compelling by the consistency of results. Consequently, patient survey evidence can be used to inform practice, research and guidelines. Misrepresentation of patient experience must be vigorously challenged, to ensure that patients and health professionals make decisions about therapies based on accurate information. |
X Demographics
The data shown below were collected from the profiles of 279 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 74 | 27% |
| United States | 17 | 6% |
| Australia | 10 | 4% |
| Netherlands | 7 | 3% |
| Ireland | 6 | 2% |
| Sweden | 4 | 1% |
| Norway | 3 | 1% |
| France | 3 | 1% |
| Canada | 2 | <1% |
| Other | 8 | 3% |
| Unknown | 145 | 52% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 244 | 87% |
| Practitioners (doctors, other healthcare professionals) | 20 | 7% |
| Scientists | 9 | 3% |
| Science communicators (journalists, bloggers, editors) | 5 | 2% |
| Unknown | 1 | <1% |
Mendeley readers
The data shown below were compiled from readership statistics for 40 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 40 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Postgraduate | 5 | 13% |
| Student > Bachelor | 5 | 13% |
| Student > Doctoral Student | 4 | 10% |
| Researcher | 4 | 10% |
| Student > Ph. D. Student | 3 | 8% |
| Other | 8 | 20% |
| Unknown | 11 | 28% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 13 | 33% |
| Social Sciences | 6 | 15% |
| Medicine and Dentistry | 5 | 13% |
| Psychology | 2 | 5% |
| Immunology and Microbiology | 1 | 3% |
| Other | 1 | 3% |
| Unknown | 12 | 30% |
Attention Score in Context
This research output has an Altmetric Attention Score of 203. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 08 May 2024.
All research outputs
#199,272
of 25,923,151 outputs
Outputs from Journal of Health Psychology
#32
of 2,190 outputs
Outputs of similar age
#4,091
of 329,054 outputs
Outputs of similar age from Journal of Health Psychology
#3
of 53 outputs
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So far Altmetric has tracked 2,190 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 13.7. This one has done particularly well, scoring higher than 98% of its peers.
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