There’s something so saddening & enraging about this. The focus of autism “treatment” is not to improve quality of life but to make autistic people adhere to the expectations set out by neurotypical people 😢 😤
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
That's what happens when researchers and their funders are not committed to the #CRPD.
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
RT @cjcrompton: A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on qua…
A systematic review found the majority of autism intervention trials focus on symptom reduction. Less than 1% focus on quality of life. I hadn't seen this paper before. Link here ⬇️ https://t.co/JbSgEEBnHI
#autism - what is being treated? https://t.co/JoBXhdI1oK
RT @TokioUchiyama: ASDの介入研究で、どんな評価ツールを使ったか406の論文をレビューしたら327ものアウトカム指標が使われてた。数えるだけでも大変だなあ。著者のみなさんは本当におつかれさまです。ASDの支援で何を目指すかは混沌としている。 https://…
ASDの介入研究で、どんな評価ツールを使ったか406の論文をレビューしたら327ものアウトカム指標が使われてた。数えるだけでも大変だなあ。著者のみなさんは本当におつかれさまです。ASDの支援で何を目指すかは混沌としている。 https://t.co/2jZtzwGuvL
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @journalautism: Now, @bolte_sven mentions this paper in our journal: "What are we targeting when we treat autism spectrum disorder? A sy…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @journalautism: Now, @bolte_sven mentions this paper in our journal: "What are we targeting when we treat autism spectrum disorder? A sy…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @journalautism: Now, @bolte_sven mentions this paper in our journal: "What are we targeting when we treat autism spectrum disorder? A sy…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @MRapalyeaOTDS: Yes, yes, and yes! 🙌🏻 https://t.co/XgOQYyHgeJ
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
RT @Peter_Autisme: Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of foc…
Excellent presentation by @bolte_sven about the importance of focusing on quality of life and functioning instead of focusing on deficits and symptoms. And, he says, this will be good for the reputation of psychiatry... #AECongress19
RT @LeadbitterKathy: We measured QoL and family priorities within a clinical trial in this paper https://t.co/Li9Hs4nBU3 https://t.co/I365l…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
Yes, yes, and yes! 🙌🏻
We measured QoL and family priorities within a clinical trial in this paper https://t.co/Li9Hs4nBU3
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @journalautism: Now, @bolte_sven mentions this paper in our journal: "What are we targeting when we treat autism spectrum disorder? A sy…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
RT @jamcusack: .@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic pe…
.@bolte_sven makes the point that outcome measures used in clinical trials don't often reflect the priorities of autistic people or family members, citing this paper. #AECongress19 https://t.co/H8VCoJXYKP
RT @journalautism: Now, @bolte_sven mentions this paper in our journal: "What are we targeting when we treat autism spectrum disorder? A sy…
Now, @bolte_sven mentions this paper in our journal: "What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials" https://t.co/SU95LC8lEU #AECongress19
RT @a_binns: Have you checked out this new systematic review on Autism outcome measures? 406 studies examined - 475 different measurement t…
RT @autismcrisis: What do autism trials (RCTs or not) target? 406 studies, 475 outcome measures, 327 used once, vs 7 used in >5% of trials…
RT @journalautism: ICYMI: What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials https://…
Interesting Q|Not being a professional I can’t claim subs to these portals so haven’t read in full however I’m interested to know what % research is aimed at finding out how non-autistics can learn from #autistic community & how they can change to bett
RT @journalautism: ICYMI: What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials https://…
RT @journalautism: ICYMI: What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials https://…
RT @journalautism: ICYMI: What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials https://…
RT @journalautism: ICYMI: What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials https://…
Réponse : sur 406 essais 327 critères , 70% des outils étaient utilisés une fois. On ne sait pas ce qu'on mesure #ethics
ICYMI: What are we targeting when we treat autism spectrum disorder? A systematic review of 406 clinical trials https://t.co/nEUkxvgPRD @SAGEpsychology
RT @milton_damian: And how many would be seen as useful or meaningful by autistic people? One of the biggest issues in autism research toda…
RT @milton_damian: And how many would be seen as useful or meaningful by autistic people? One of the biggest issues in autism research toda…
RT @a_binns: Have you checked out this new systematic review on Autism outcome measures? 406 studies examined - 475 different measurement t…
RT @milton_damian: And how many would be seen as useful or meaningful by autistic people? One of the biggest issues in autism research toda…
RT @milton_damian: And how many would be seen as useful or meaningful by autistic people? One of the biggest issues in autism research toda…
RT @milton_damian: And how many would be seen as useful or meaningful by autistic people? One of the biggest issues in autism research toda…
RT @a_binns: Have you checked out this new systematic review on Autism outcome measures? 406 studies examined - 475 different measurement t…
RT @a_binns: Have you checked out this new systematic review on Autism outcome measures? 406 studies examined - 475 different measurement t…
RT @a_binns: Have you checked out this new systematic review on Autism outcome measures? 406 studies examined - 475 different measurement t…
RT @milton_damian: And how many would be seen as useful or meaningful by autistic people? One of the biggest issues in autism research toda…